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Dystonia

I have myoclonic dystonia, a genetic neurological condition that means my body doesn't always do what it's told. Here I tell the story of the discovery, living with it, the treatments that don't work, and the day-to-day strategies.

2025-01-01
My body doesn't do what I tell it to

My body doesn't do what I tell it to

2025-01-05
What doesn't work (and why)

What doesn't work (and why)

2025-01-08
Building a life on shaking foundations

Building a life on shaking foundations

2025-01-10
Whatever you do, don't breathe too hard

Whatever you do, don't breathe too hard